
NEWS & EVENTS
20 January 2021
Webinar
First webinar on appraisal for rare disease treatments
WP10 is presenting a series of four webinars relating to appraisal of rare disease treatments.
In this first webinar, Elena Nicod and Karen Facey presented international research with HTA bodies that has led to Recommendations to Enhance Appraisal Processes for Rare Disease Treatments.
Cliff Goodman from the Lewin Group led the discussion about feasibility of proposals with HTA experts.
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The discussion and audience interactions will inform the research team's final development of the recommendations. Panellists included:
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Antonio Addis, Regional Health Service – Lazio Region (Italy)
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Einar Andreassen, NOMA (Norway)
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Peter Jackson, Chair HST NICE (England)
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Vinciane Pirard, Orchard Therapeutics (Industry)
The slides presented are available as a PDF and recording of the webinar can be accessed HERE
10–11 January 2019
Warsaw
IMPACT HTA 2nd Project Meeting
The meeting was hosted by AOTMiT. All partners reviewed the research done to date and discussed next steps, further collaborations and dissemination activities.
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For an update on research, check the presentations below.
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WP2: Development and application of a tool to combine and use RCT and observational registry data in economic evaluation
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WP3: Developing a costing methodology and a core dataset of costs for facilitating cross border comparisons in economic evaluation
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WP4: Social costs and their role in economic evaluation for health care decision-making
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WP5: Exploring health preferences on different sub-population groups using EQ-5D
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WP6: Methodological guidance on the analysis and interpretation of non-randomised studies to inform health
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WP7: Methodological tools using multi-criteria value methods for HTA decision-making
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WP8: Analysis of economic evaluation methods for hospital-based assessment
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WP9: Expanding economic analysis for HTA: methods for measuring fiscal impact of new healthcare interventions
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WP10: HTA appraisal of medicines for rare diseases
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15–16 May 2020
Stockholm
10th European Conference on Rare Diseases & Orphan Products (ECRD)
The 10th ECRD will take place in Stockholmsmässan, Stockholm, Sweden. For more information on the conference, please visit the ECRD website (here).
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Poster abstracts – submissions now open (until 10 February)
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Patient Advocate Fellowship Programme – applications now open (until 2 December)
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New Linkedin ECRD page – please follow and share with your network.
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13–14 January 2020
Milan
IMPACT HTA 3rd Project Meeting
The meeting was hosted by Bocconi University. Partners discussed the research completed to date and discussed next steps, potential outputs and dissemination activities.
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For an update on research, check the presentations below.
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WP4: Social costs and their role in economic evaluation for health care decision-making
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WP5: Exploring health preferences on different sub-population groups using EQ-5D
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WP7: Methodological tools using multi-criteria value methods for HTA decision-making
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WP8: Analysis of economic evaluation methods for hospital-based assessment
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WP10: HTA appraisal of medicines for rare diseases